There are several places to find resources for Lewy Body Dementia. Websites, support groups, and forums can all be helpful in finding information and support. It is important to remember that everyone experiences LBD differently, so not all resources will be equally helpful for everyone. However, with a little bit of searching, it is possible to find resources that can be very helpful.
Lewy Body Dementia Association
The Lewy Body Dementia Association is a national non-profit organization dedicated to improving the lives of people with Lewy body dementia, their caregivers, and families. They provide support, education, and resources for people with Lewy body dementia, their caregivers, and their families. They also advocate for better understanding and awareness of Lewy body dementias. https://www.lbda.org/
Lewy Body Society
The Lewy Body Society is a British organization dedicated to providing resources and support for those affected by this disease. The society offers a variety of resources, including educational materials, support groups, and financial assistance. They also advocate for greater awareness of the disease and research into its causes and treatments. The Lewy Body Society is committed to helping people affected by this debilitating disease live fulfilling lives. With their resources and support, patients and caregivers can navigate the challenges of this condition with knowledge and hope. https://www.lewybody.org/
Washington University School of Medicine in St. Louis
Analysis of neurodegenerative disease-causing genes in dementia with Lewy bodies
The Washington University School of Medicine, Department of Neurology publication regarding Dementia with Lewy Bodies. It focuses on genetics and what data suggests.
Michael J. Fox Foundation — Ask the MD: What Is Lewy Body Dementia?
A comprehensive article about Lewy Body Dementia, how it is diagnosed, treated, and more. https://www.michaeljfox.org/news/ask-md-what-lewy-body-dementia
Exercise Videos from the American Parkinson Disease Association (APDA) – Greater St. Louis Chapter
You won’t find better exercise videos for people with Parkinson’s Disease and Lewy Body Dementia! These exercise videos include seated-only classes, Tai Chi, Strength and Cardio, circuit training, and meditation. https://www.youtube.com/c/APDAGreaterStLouisChapter
Teepa Snow’s Positive Approach to Care
Teepa Snow is well-known in the dementia community. Her videos show real ways to deal with hallucinations, delusions, mobility, and more. https://www.youtube.com/c/teepasnowvideos